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The Privacy Risks of Direct-to-Consumer Genetic Testing


The Privacy Institute and the Department of Psychology at Ryerson University are pleased to invite you to attend a talk with Emily Christofides (Postdoctoral Researcher, University of Guelph) about company disclosure and consumer perceptions of the privacy risks of direct-to-consumer genetic testing on April 27, 2015, at Ted Rogers School of Management.

Opening remarks will be provided by Professor Martin Antony, Chair of the Psychology Department, Ryerson University.

With scientific advances and technological changes that make accessing health information easier, people are increasingly taking more ownership over their health-related decisions. One way individuals have gained greater access to health information is through direct to consumer genetic testing (DTCGT), which enables people to order genetic tests directly from a company to learn about their ancestry, asses a wide array of potential diseases and health issues, or determine the chances of their children inheriting a genetic disorder. However, as yet very little attention has been given to the challenges to individuals’ privacy that arise from private companies having access to, storing, and conducting research using customers’ genetic information, which is a new and largely unexplored source of personal information. At this talk, we will discuss consumers’ privacy concerns as well as their reasons for and against purchasing DTCGT.


Date: April 27, 2015

Time: 12-2pm

Place: Room TRS 2-003 (2nd floor of the Ted Rogers School of Management, 55 Dundas Street West). 


A light lunch will be served.


The event is FREE, but you need to reserve your spot to attend.

Please RSVP to with "April 27 event" in the subject line.